It’s finally happening! The kids’ & teen fashion show my mom and I have been working on is almost here. It’s by kids, for kids, and we’re going to help Hannah’s family prepare their home for her medical needs!!! I wrote about Hannah, a girl with Batten Disease, HERE. Go read it, so you know what’s up!
I’ll post the stuff my mom wrote about the Fashion Show below, so I don’t have to rewrite all that. Lol! You can also click HERE to join the Facebook event and stay updated on all the details!
See you soon on the runway, all my awesome friends!!!
FOR IMMEDIATE RELEASE – TICKETS AVAILABLE SOON!!!
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Date: September 13th, 2pm / Location: Saint Alphonsus McCleary Auditorium, 1055 N. Curtis Rd., Boise, ID, 83706
CALL FOR STORES, DESIGNERS, MODELS, SPONSORS, VOLUNTEERS
Kids’ Fashion Rulz! children & teen Fashion Show presented by StyleSpyGirl.com. Bring the entire family for a fun show featuring kids’ and teens’ Fall Fashions from The Village, Boise Towne Square, and boutiques and local designers from across the Treasure Valley. Proceeds benefit the Rodgers Family, whose precious young daughter is battling fatal Batten Disease. Her biggest wish is to someday be a supermodel. Come support Hannah as she gets her wish, and walks the runway as the evening’s star model!
Hannah Rodgers is 9 years old, and is currently the only person in the state of Idaho with the very rare and devastating disease known as Batten Disease. Batten is a neurodegenerative disorder that begins in childhood and presents itself through seizures, personality changes, a decrease in motor skills, and the onset of blindness. There is currently no cure for Batten. Over time, affected children lose their sight, suffer mental impairment, worsening seizures, and progressive loss of motor skills. And the disease ultimately takes their life.
Hannah is dealing with all of these things, but does NOT know that her illness is fatal. She knows that she will not get better, and that her family is doing all they can to help her live this life to the fullest, for now and with all the love and energy they have! Hannah’s family is facing major challenges with her care, as it will take about 10 years for the disease to slowly and painfully take their daughter. By the time she is a young adolescent, she will be wheelchair-ridden, unable to speak or feed herself, and completely reliant on her family. To this end, they are preparing their home for Hannah’s care, installing wheelchair ramps, widening doors, and adding a new bedroom for her that will be big enough to accommodate all of her medical equipment and care. Combined, these projects are a huge financial challenge.
Kids love helping kids! This event will allow local youth to do just that. During this huge fall fashion show kids and teens will model back-to-school clothes, and support Hannah as she walks down the runway. She is already completely blind, so she will be escorted by her sister and her best friend. As I mentioned above, her dream is to become a supermodel. Hannah will hear and feel it all; the music, the applause, and the cheers of a supportive community who cares about kids, and making her dream come true.
Join us as a community of families to become the Rodgers’ Extreme Home Makeover, in a manner of speaking! All proceeds will go into a special fund for their family, to help cover some of the costs accumulated as they make every effort for Hannah to live her life to the fullest. Come enjoy the fashion show, encourage the kids, experience the live entertainment, and help a family in need!
Kids’ Fashion Rulz! is looking for:
Partners, Sponsors, and Volunteers
Kid and Teen clothing stores, boutiques, retailers to show their products on the runway
Local kid & teen fashion designers
Kids and teens to model
Hair and Makeup volunteers for backstage prep
If you, your child, or your business want to be involved, please comment below, or email me at Tanya@stylespygirl.com!
Contact: Tanya Carnahan, StyleSpyGirl/Fashion Show Coordinator
Tanya@stylespygirl.com / (208) 841-9606